You are the experiment. What situation in your Migraine/Headache Disorders treatment made you feel most like a guinea pig or lab rat?
Oh there are so many instances of feeling like a lab rat be it from friends’ suggestions, doctors’ or of my own ideas. How about the magnet bracelet for forty plus dollars that didn’t even come close to making a fashion statement? Or my well meaning pcp who keeps adjusting meds i.e. off and back on Simvastatin, new vitamins to try! But my rat tail really glowed about nine years ago when I asked my old pcp to please let me try Toprimate.
It’s an anti-seizure medication that was being touted in magazine articles about nine years ago or so as a migraine preventative. I had an awesome pcp at the time who was always willing to hear me out and liked learning about new things if there was something he hadn’t heard of before. He delved into his Physician’s Desk Reference and other guides as I would be his first but not last migraine patient to ask about Toprimate/Topamax.
Increasing this medication to a therapeutic level was done slowly and in two week increments with follow-up appointments along the way. Almost at the outset, I noticed a sluggish affect as well as misty brain fog. This was my chance to thwart the migraine beast however, so what the heck was a little tortoiseness?
By full dosage, I was driving my husband crazy. It took us almost two hours in the grocery store because even with a list in hand, I kept missing things and was circling all over the store back and forth. Of course the timing couldn’t have been worse what with us hosting fifty plus people in our small house for Thanksgiving! I don’t know how I made it through.
At work I found myself substituting words that didn’t convey the message I was trying to put out. Was I ever the butt of the laughs! I worked with adults who have cognitive impairments, and they thought I was hilarious. “What do you mean put the box of tacks in the bathroom? You’ve lost your marbles!” they’d laugh. My coworkers merely stoked the joke flames.
Yet the fact that I still had migraines coming on as steadily as ever was no laughing matter. When it took five hours to decorate our Christmas tree, I realized this medication, or Dopa— rhymes with Topamax as I fondly called it, was no friend of mine. The rat was toast. Experiment failed. Titration took awhile but eventually I was glad to get my mind back even if it was still riddled by migraines.
Disclaimer: The medication treatments and other possible solutions for Migraines are merely my own opinion and are not meant as advice to anyone. This medication did not work for me, but it does help many others with managing their migraines. Please check with your physician before undergoing any plan.
June 2013, Migraine and Headache Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders.
The 2013 Migraine and Headache Awareness Month Blog Challenge is a project of http://FightingHeadacheDisorders.com